Our focus is on data arising from the use of SciLifeLab infrastructure platforms, both to promote research on adding value to data, research deriving biological knowledge from data, and infrastructure making data findable and available. At SciLifeLab, we see data as one of the most valuable and long-lasting products of our operations and strive to make our data FAIR, handled according to open science standards and that its long- term value to the scientific community is maximized.
The SciLifeLab Data Repository, powered by Figshare, is a repository for publishing any kind of research-related data, e.g. documents, figures, or presentations. Figshare is an open data repository used by researchers in numerous disciplines. Through an agreement with Figshare, SciLifeLab offers researchers and facilities the opportunity to upload and publish their research data through a dedicated portal. Figshare is financed by Digital Science, a firm based in the UK.
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The Swedish COVID-19 Data Portal provides information, guidelines, tools and services to support researchers in utilising Swedish and European infrastructures for data sharing, in particular the European COVID-19 Data Portal.
Below you can see SciLifeLabs published research per year. See the publication dashboard for more data.
In 2017, the SweGen project published its findings, “SweGen: a whole-genome data resource of genetic variability in a cross-section of the Swedish population“. The data from this project is available to the scientific community, and this includes access both to aggregate allele frequency data (through the SweFreq database) and full whole-genome sequencing data from 1000 individuals, subject to access control arrangements. SciLifeLab Data Centre manages the access, together with NBIS, SNIC and the SweGen project group. The aggregate data in SweFreq comes with specific access terms but is generally available to the public. Please see these terms here.
The data set connected to the publication “RNA Sequencing Provides Novel Insights into the Transcriptome of Aldosterone Producing Adenomas“. It contains RNA-Seq data from fifteen aldosterone producing adenomas, Whole Genome Sequencing data from two aldosterone producing adenomas and one normal peripheral blood sample. SciLifeLab Data Centre manages the access, together with NBIS, SNIC and the AldoRNAseq project group.
The General Data Protection Regulation (GDPR) requires data processing agreements, and the public genomics archives available in Europe do not enter such agreements. The datasets above will be deposited in a GDPR-compliant local EGA-node as soon as this service is available. Until then, the data is deposited on a secure Swedish server, but regulations by the service provider may make access technically restricted to PIs at Swedish organizations. Data access requests may be submitted to the SciLifeLab Data Centre.
Yes, if the requirements above are fulfilled and if the subject of your study where the data will be used is covered by the informed consent given by the individuals sequenced, and if there is an ethical permission that covers the research project.
On 25 May 2018, the EU General Data Protection Regulation, GDPR, will replace our Swedish Personal Data Act. The biggest changes are that individuals’ rights are more strongly protected and the Regulation applies in all EU countries.
The General Data Protection Regulation requires a legal basis for all processing of personal data. Individuals are given greater control over their personal data in various ways. Their right to access data that they have submitted themselves is strengthened, as is the possibility of having information corrected or being forgotten and having information erased. All processing of personal data must comply with the fundamental principles specified in the GDPR.
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